About TUBB3 Foundation
To raise awareness of TUBB3 mutations through research and advocacy, and to connect and support individuals and families affected by TUBB3 mutations.
We envision a world where TUBB3 mutations are more easily diagnosed, where individuals and families affected can have a deeper understanding of TUBB3 related tubulinopathy through research as well as connections with other families, and where individuals have access to interventions that maximize quality of life.