About The Yaya Foundation for 4h Leukodystrophy
Today, when a child is diagnosed with 4H Leukodystrophy, a rare genetic neurological disease, doctors tell their parents that there are no therapies available and, essentially, that “there is nothing we can do.” The Yaya Foundation exists to change that and to fight for people affected by 4H by accelerating therapy discovery and improve the lives of those people living with 4H Leukodystrophy and to provide educational and emotional support for affected families.
We believe that all people deserve to live their lives to their fullest ability, free of rare disease. With urgent focus and strategic collaboration, we believe that we can rid our global community of the effects of 4H Leukodystrophy.
The Yaya Foundation believes in open science, relentless collaboration, and enabling therapeutic developments that are available to patients no matter who they are or where they live.
By partnering with US Bank Stadium in Minneapolis, MN, USA to Light Up For Rare for a 2nd year, the Yaya Foundation has an opportunity to show support for its community while also expanding who cares about the impacts of and shows support for 4H.
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