About The Nathan Asher Foundation
The Nathan Asher Foundation will be having a Rare Disease Walk on Sunday February 25, 2018 and Education sessions in various schools on Wednesday, February 28.
The Walk-a-thon will be at the Queens Park Savannah in Port of Spain, Trinidad and will commence at 6:00am. The starting point will be the side of the Savannah, opposite the US Embassy. The distance is approximately 3.5km on flat land and there will be a warm up session prior to the start of the walk and a cool down session after.
Other activities- The period of activities will be from 6:0am to 12md and will include health sessions where blood pressure and blood glucose testing will be done. These tests are in addition to presentations on rare diseases in children aimed at raising awareness of rare diseases.
How the NAF started
It all started when Nathan Asher Ellis, who at the time, was an only child for his parents, was diagnosed with a rare and life-threatening liver disease. Through significant financial, emotional and spiritual support, Nathan was able to undergo surgery in May 2017 that saved his life. He is now a healthy and happy toddler. His family members, after receiving such kindness, felt the need to give children like Nathan another chance at life and so the Nathan Asher Foundation was born. The objectives of the Foundation include:
Generating funding through fundraising events
Raising awareness about children with rare diseases
Providing group and individual support sessions that empower and give hope to children with rare diseases and their families
Collaborating with prospective donors to assist affected children who may not have insurance and do not qualify for government aid
Fostering a healthy and robust rare disease research environment