About The Cute Syndrome Foundation
The Cute Syndrome Foundation is the starting point for support for new families to reach as they receive an SCN8A diagnosis. We help clinicians standardize treatment for individuals with SCN8A. We work to expand scientific knowledge of rare genetic mutations associated with pediatric epilepsy and are the mainstay foundation to increase public knowledge of SCN8A mutations. For Rare Disease Day, we share awareness materials on our social media pages, in our support group, and through our email newsletter to families.
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