About Thalassemia Foundation Ghana
The organisation is involved in awareness campaigns for rare diseases especially thalassemia and sickle cell.
Thalassemia Foundation – Ghana is a member of Thalassaemia International Federation.
PROGRAMS AND ACTIVITIES
The Thalassemia Foundation provides a wide range of services and activities that benefit parents of genetic orders. Our primary focus is on awareness and patient care.
Ghana ThalaSickle Patients/Parent Association is a group of patients and families that come together to share ideas, fight for affordable medication, good treatment and advocate for better medical support and favourable governments policies for them.
General Public Awareness Education: We educate the public about Thalassemia & Sickle cell diseases which are preventable genetic blood disorders through small talks in churches, offices, colleges and schools etc.
Patient Services: We offer invaluable psychosocial support in confronting the challenges of a lifelong illness with advice on nutrition and healthy living.
Genetic/ Marriage Counseling: Genetic / Marriage counseling for couples and would be couples are also carried out.
ThalaSickle Care online: Educational series on Thalassemia and Sickle Cell online (Facebook page and YouTube: Thalassemia Foundation Ghana).
Our Blood Donation Drives: We conduct blood donation to support the blood bank.
Socioeconomic Research: We organize research on medical, economic and social lives style of people affected and their families.
Laboratory Testing: In collaboration with other Diagnostic centers we carry out Laboratory investigations with the advanced technology in the diagnostic field