About Rocket Pharmaceuticals
ROCKET RARE DISEASE MONTH 2021: Expert Panel Series
Abbey Meyers: A Parent’s Quest to Make a Difference in Rare Diseases
Feb 5, 2021 11am–12:30pm ET
Join us for an intimate discussion with Abbey Meyers, catalyst for the Orphan Drug Act of 1983 and National Organization for Rare Disorders (NORD) founder.
Register: https://rocketpharma.zoom.us/webinar/register/WN_SNbJaKKHQSCQ07egjNQUJg
Revealing the Power of Genetic Testing
Feb. 12, 2021 11am–12:30pm ET
Learn the ABCs of genetic testing from patient advocates Seth Rotberg and Ron Gladue, and genetic counselor Amy Jonasson. Topics will include their personal journeys and practical advice for patients and families including types, access, and timing of genetic tests, and benefits of testing.
Register: https://rocketpharma.zoom.us/webinar/register/WN_YmArNV9xQfevNOk6N3X5rw
Beyond ClinicalTrials.gov – The Clinician’s Perspective in a Gene Therapy Study
Feb. 19, 2021 11am–12:30pm ET
Join study physicians Claire Booth, Julian Sevilla Navarro and Ami Shah as they share insight on how to navigate some of the common challenges and considerations for gene therapy clinical trials.
Register: https://rocketpharma.zoom.us/webinar/register/WN_rlglbj8iSA21JbIEiZ30ow
How to Go from Caring for 1 to Caring for a Community
Feb. 26, 2021 11am–12:30pm ET
Join our panel to learn how advocates have built supportive communities and the lessons learned along the way.
Register: https://rocketpharma.zoom.us/webinar/register/WN_G3HadM97TFChGmIs35CWcQ