About Raríssimas
2002, a group of mothers got together “to help patients, families and friends who live closely with rare diseases.” The result was Raríssimas – Associação Nacional de Deficiências Mentais e Raras (National Association of Mental and Rare Illnesses).
Today, Raríssimas asserts itself as a reference in the field of rare diseases, not only in Portugal but also in Europe, in Brazil and in Latin America, where it supports the various Health Ministries.
Raríssimas has given a voice to the issues of rare diseases in Portugal, increasing the scope of its actions and expanding its services, so that it currently has staff, trained in rare diseases, working to make early diagnosis in this key area a reality