About Raiden Science Foundation
UBA5 is a rare progressive neurological genetic disorder. There have been less than 30 genetically confirmed and reported cases in the world. Life expectancy is unknown, and kids impacted can suffer from movement disability, cognitive impairment, and uncontrollable epilepsy. There are no effective treatments or cures currently for UBA5 disease.
Our MISSION is to harness to power of family, community, and science to accelerate development of UBA5 therapies.
Our VISION is to create a future where there are paths forward for treating rare diseases and empowering families to make a difference.