About PURA Syndrome Foundation
It is in coming together that we find the strength to endure the hardships, learn about the wonder of others and create a place to celebrate success.
Together we are Family.
The PURA Syndrome Foundation is a global not-for-profit organization. Our mission is to serve, educate and fund research for families coping with the effects of PURA Syndrome. Foundation, families, clinicians and researchers together as one community.