About PURA Foundation Australia
The PURA Foundation Australia is a non-profit charity that has been established to raise awareness, support research and provide education for individuals diagnosed with PURA syndrome and their families, across Australia and New Zealand.
We assist the PURA syndrome community both locally and globally. This community provides a place of belonging to those who may otherwise feel isolated by rare disease, enriches the medical research being completed and educates those outside the community about the condition.
We plan to hold family gatherings across country and online education campaigns