About Pompe Deutschland e.V.
Pompe Germany (“Pompe Deutschland e.V.”) aims to provide information and support to German speaking people affected by Pompe Disease. Pompe Germany is part of a global network that relies on the knowledge and experience of patients, patient support groups, physicians, scientists, universities, medical centers, research centers and industry. We recognize the expertise of all partners and believe that joining forces is key to success. Thus, Pompe Germany, as an independent organization, offers a trustful, fair and transparent cooperation for the benefit of Pompe patients.
We are open for international contacts and suggestions. Please contact us!
Pompe Germany was founded on April 24, 2016 as a patient support group. We are a registered association and have received charitable, non-profit status from German fiscal authorities.