Our friends

Check out how these 1,400 amazing organisations are raising awareness!

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EDS GUATEMALA

Country Organiser

EDS Lëtzebuerg asbl

Patient Organisation
Goedert Jessica

Egyptian society of medical genetics

Country Organiser
Solaf Elsayed

Ehlers-Danlos Organisation e.V.

Non-governmental organisation (NGO)
Bettina Brossart

Ehlers-Danlos Support Group of Jacksonville

Patient Group
Rachel Goodman

Ehlers-Danlos Syndrome Canada

Patient Group
Tiffany Skladan
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