Our friends

Check out how these 1,400 amazing organisations are raising awareness!

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CDKL5 Canada

Sangeeta Staley

CDKL5 Research Collaborative/Kiera’s Hope project

Researchers
Katheryn Elibri Frame

CdLS האגודה הישראלית

Caregiver
Hodaya Harel

CdLS Israeli Foundation

EURORDIS Member
Hodaya Harel

Cello Health

Private company
Naomi Brears

Center for Ichthyosis Related Members Foundation India

Patient Organisation
Christina Raj
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