Our friends

Check out how these 1,400 amazing organisations are raising awareness!

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Cátedra de Anatomía Patológica A-FO-UNC

Health Professional
Ramiro Alejandro Tomasi

Cavernöst Angiom Sverige (CASE)

EURORDIS Member
Jana Bergholtz

Cavernöst Angiom Sverige (CASE)

Patient Group
Jana Bergholtz

Cayenne Wellness Center

Other
Dr. Carolyn Rowley

CBLC ONLUS

Country Organiser

CCHS UK

Other
Sophie Wagstaff

CDH International

EURORDIS Member
Dawn Ireland

CDH UK

EURORDIS Member
Bev Power

CDKL5 Alliance FRancophone

Mme Morisseau
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