Our friends

Check out how these 1,400 amazing organisations are raising awareness!

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Barth Syndrome Foundation of Canada

Susan Hone

Bartter syndrome foundation

Patient Group
Lilia Hoffman

Başkent Üniversitesi

Educational institution

#BastaPoco #RareDisease

Patient Group
Laguardia Michela

Batten Disease Australia

Patient Group
Jenny Rixon

Batten Disease Support and Research Association

Researchers
Mike Gouin

Baylor College of Medicine

Health Professional

BCAP31.org

Patient Organisation
Anna Wilson

BCM Families Foundation

Caregiver
Renata Sarno
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