Our friends

Check out how these 1,400 amazing organisations are raising awareness!

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Batten Disease Australia

Patient Group
Jenny Rixon

Batten Disease Support and Research Association

Researchers
Mike Gouin

Baylor College of Medicine

Health Professional

BCAP31.org

Patient Organisation
Anna Wilson

BCM Families Foundation

Caregiver
Renata Sarno

Be Limitless

Private company
Kylie Zehnder

Beat SCAD

Other

BEATKAPS

Other
BEATKAPS

Beck-Fahrner Syndrome Foundation

Patient Group
Jaime Middaugh (founder)
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