Our friends

Check out how these 1,400 amazing organisations are raising awareness!

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stichting spierkracht

EURORDIS Member
Sayen Leijenhorst

Stichting TAPS Support

Other
Stephanie Ernst

Stickler Syndrome Italy

Non-governmental organisation (NGO)
Irene Panizzolo

Stiff Person Syndrome Association

Patient Group
Michael D West

Stiff Person Syndrome Support Group

Patient Group
Liz Blows

Stiftung Joël Kinderspitex, Schweiz

Health Professional
Simon Fuchser

Student Line for Rare Diseases

Health Professional
Student Line for Rare Diseases
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