Our friends

Check out how these 1,400 amazing organisations are raising awareness!

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Rare Diseases South Africa

National Alliance
Kelly du Plessis

Rare diseases Sweden (RIKSFÖRBUNDET SÄLLSYNTA DIAGNOSER)

National Alliance
Stephanie Juran

Rare Diseases TRC & Cambridge Rare Disease Network

Patient Group
Georgina Norris

Rare Disorders Kenya

National Alliance
Christine Mutena

Rare Disorders New Zealand

National Alliance
Amy Watson

Rare Disorders Society (Singapore)

Country organiser
Kenneth Mah

Rare Disorders Society (Singapore)

Patient Organisation
Jasmine Lee

Rare Disorders Trust

Country Organiser
Ashley Runganga

Rare Epilepsy Network (REN)

Patient Group
Ilene Miller
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