Our friends

Check out how these 1,400 amazing organisations are raising awareness!

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Rare Disorders Society (Singapore)

Country organiser
Kenneth Mah

Rare Disorders Society (Singapore)

Patient Organisation
Jasmine Lee

Rare Disorders Trust

Country Organiser
Ashley Runganga

Rare Epilepsy Network (REN)

Patient Group
Ilene Miller

Rare Friends FNQ

Patient Group

Rare Genomics

Other
Tuqa Youssef

Rare Genomics Institute

Researchers
Tuqa Youssef

Rare Genomics Institute Israel

Researchers
Annick Rothschild

RARE Ireland

Country organiser
Lyndsey Walsh
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