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Rare Disease Network

Country Organiser
-

Rare Disease Network of Alberta

Country organiser
Dustin Hittel

Rare Disease Nigeria

Patient Group
Chisom Pius

Rare Disease Nurse Network

Other
Michelle Conway

Rare Disease Research Partners

Researchers
Lianne Mott

Rare Disease Salzburg

Patient Group
Helmut Kronewitter

Rare Disease UK

National Alliance
Farhana Ali

Rare Diseases Association Albania

Patient Organisation
Besmira Basholli

Rare Diseases Bulgaria

National Alliance
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