Our friends

Check out how these 1,400 amazing organisations are raising awareness!

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PURA Syndrome Foundation

Patient Group
Joanna

Pusat Sumber Sekolah SMK St. Francis

Educational institution
How Mo Chang

Push Birth Partners (“PUSH”)

Other
Jacqueline McLeeland

PVNH Support & Awareness

Patient Group

PVNH Support & Awareness

EURORDIS Member
Yolaine Dupont

Q-State Biosciences, Inc

Researchers
Denise Johnson

QAscent Research Solutions

Private company
Ravi Sharma

qRare International

Researchers
Qais Abu Ali, MD, FACMG

Quanticate

Private company
Nick Darbey
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