Our friends

Check out how these 1,400 amazing organisations are raising awareness!

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Pulse Infoframe

Private company
Ryan Sheedy

PURA Foundation Australia

Other
Mel Anderson

PURA Syndrome Foundation

Patient Group
Joanna

Pusat Sumber Sekolah SMK St. Francis

Educational institution
How Mo Chang

Push Birth Partners (“PUSH”)

Other
Jacqueline McLeeland

PVNH Support & Awareness

Patient Group

PVNH Support & Awareness

EURORDIS Member
Yolaine Dupont

Q-State Biosciences, Inc

Researchers
Denise Johnson

QAscent Research Solutions

Private company
Ravi Sharma
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