Our friends

Check out how these 1,400 amazing organisations are raising awareness!

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Polish MRKH Support

Patient Group
Karina Sasin

Polish National Forum on the Treatment of Orphan Diseases – ORPHAN

National Alliance
Mirosław Zieliński

POMC ISLAND

Caregiver
Karen

Pompe Alliance

Patient Group
Heather Shorten

Pompe Deutschland e.V.

Patient Group
Thomas Schaller

Pompe Support Network

EURORDIS Member
Allan Muir

Pontificia Universidad Javeriana Colombia

Educational institution
Fabian Tobar-Tosse

PPD Portugal

Private company
Ângela Papa

Prader-Willi Syndrome Association (USA)

Patient Group
Steve Queior
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