Our friends

Check out how these 1,400 amazing organisations are raising awareness!

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Newcastle University

Researchers
Jackie McGuigan

Next Generation of Cystinosis

Patient Group
Mika Jayne Covington

NF2 PROJECT APS

Other
Pesci Letizia

NGO KARKINAKI

EURORDIS Member
MENIA KOUKOUGIANNI

NGO “Rare Diseases of Ukraine”

National Alliance
Tetiana Kulesha

NHS Grampian

Public Authority

Niemann Pick Argentina

Patient Group
Marcelo Minotti
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