Our friends

Check out how these 1,400 amazing organisations are raising awareness!

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New York Police Department (NYPD)

Public Authority
Kevin O'Connor

New Zealand Pompe Network

Patient Group
Allyson Lock

Newcastle University

Country Organiser

Newcastle University

Researchers
Jackie McGuigan

Next Generation of Cystinosis

Patient Group
Mika Jayne Covington

NF2 PROJECT APS

Other
Pesci Letizia

NGO Committee for Rare Diseases

Other

NGO KARKINAKI

EURORDIS Member
MENIA KOUKOUGIANNI

NGO “Rare Diseases of Ukraine”

National Alliance
Tetiana Kulesha
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