Our friends

Check out how these 1,400 amazing organisations are raising awareness!

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Alliance for Cryoglobulinemia

Country organiser
Marianne Venitti, Eileen Propp

Alliance for Pulmonary Hypertension

Non-governmental organisation (NGO)
Pisana Ferrari

Alliance for Pulmonary Hypertension

Patient Organisation
Pisana Maria Ferrari

Alliance Maladies Rares

National Alliance
Anne-Sophie Blanchard

Alliance Tunisienne des Maladies Rares & Association la Recherche en Action & Association des jeunes chercheurs de l’IPT

Researchers
Nadia Zitouna

ALMOHA: Association de Lutte contre les Maladies rares, les maladies Orphelines et le Handicap en Afrique

Country organiser

Alpha-1 Foundation Ireland

EURORDIS Member
Geraldine Kelly

Alpharmaxim

Private company
Sophie Jones

ALS ONE

Other
Jennifer DiMartino
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