Our friends

Check out how these 1,400 amazing organisations are raising awareness!

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Malaysia Lysosomal Diseases Association

Patient Group
Secretary

Mamata medical college

Other
Nitheshkumar karlapudi

Mamo Papu

Health Professional
Joanna Krasińska

Mansoura University – Faculty of Medicine

Other
Randa Abdelaal Abdelrahman - Dina Ragab Elagooz - Menatalla Mahmoud Allam - Bassante Farouk Mohamed.

MAP Patient Access

Private company
Kat Boness

MaRaVal – maladies rares valais – seltene krankheiten wallis

EURORDIS Member
Christine de Kalbermatten

MaRaVal – maladies rares valais – seltene krankheiten wallis

EURORDIS Member
Christine de Kalbermatten
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