Our friends

Check out how these 1,400 amazing organisations are raising awareness!

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Ali Kimara Rare Disease Foundation – AKRDF

National Alliance
sharifa Mbarak

Alianza Mexicana de Familias con Von Hippel Lindau, A.C.

Country Organiser
Edith Godina y Alejandra Cadena

Alira Health

Health Professional
Alira Health

All-Russian Society for Phenylketonuria

National Alliance
Matlyuba Khakimova

All Saints School Winter Park

Other
Jamie Blucher
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