Our friends

Check out how these 1,400 amazing organisations are raising awareness!

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Kazakhstan Sanofi Genzyme

Private company
Labodovskaya, Nadezhda

KBG Foundation

Patient Group
Annette Maughan

KBG Foundation

Patient Group
Annette Maughan

KBG Foundation

Annette Maughan

KBG Syndrome Association

Patient Organisation
Brianna

Keeping Chronic Pretty

Patient Group
Jessica Jones
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