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AISMME ASSOCIAZIONE ITALIANA SOSTEGNO MALATTIE METABOLICHE EREDITARIE APS

Patient Organisation
MANUELA VACCAROTTO

AISNAF onlus

Caregiver

AKABE (ASSOCIATION KABUKI BELGIUM)

Caregiver

AKU Society

EURORDIS Member
Hannah Dwyer

Al Jalila Children’s Speciality Hospital

Health Professional
Sattar Alshryda

Al-Jawhara Centre/ Arabian Gulf University

Health Professional
Dr. Cristina Skrypnyk

Al Shifa Trust Eye Hospital

Health Professional
Rutaba Gul

Alabama Rare

Country Organiser

ALAMERA

Patient Group
Ms. Carmelita El-Khawand
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