About Nerve Tumours UK ( Neurofoundation )
We as founding members of the Genetic Alliance are highlighting genetical rare conditions as part of their organisation of various parliamentary events and awareness raising campaigns – specifically making the voice of the 26 500 that are affected with NF1 – NF2 – Schwannomatosis and Schwannomatosis. This year we are specifically highlighting key stories on the impact of visible difference and descriminitions that so many that are affected continue to face