About NEHI Research Foundation
NEHI Research foundation aims to create better futures through the support of research. We also work to support our families navigate this journey that seems very isolating. There are no cures or treatments for NEHI, just the supportive care of Oxygen therapy. Life with Oxygen can be challenging and sometimes even getting the necessary equipment is a battle. Together we advocate for quality and consistent care for our patients. We firmly believe that we are stronger together! Each year we try to spotlight our NEHI Warrior children to show that we care for rare and these amazing children who inspire us daily.