About NCL-Stiftung
Childhood Dementia (Neuronal Ceroid Lipofuscinosis, or NCL) is a metabolic disease that has hardly been researched to date. It is incurable, progresses inexorably and leads to early death.
Affected children go blind, suffer from epilepsy and increasingly lose their cognitive and motoric abilities until they die – usually before the age of 30. As the NCL Foundation, we are committed to national and international research funding in order to give children affected by NCL a prospect of previously missing therapeutic and curative approaches.
We are planning a social media challenge for the upcoming rare disease day. For more information, please visit our Instagram account @ncl_stiftung!