About Lymphoma and Related Diseases Registry
The Australasian Lymphoma and Related Diseases Registry is a Clinical Quality Registry. We collect data to monitor and benchmark the quality of clinical care given to patients newly diagnosed with lymphoma, non-Hodgkin Lymphoma (NHL), Hodgkin lymphoma (HL), Chronic Lymphocytic Leukaemia (CLL) and related diseases.
We aim to:
– Monitor access to care;
– Benchmark outcomes nationally and internationally;
– Explore variation in practice, process and outcome measures;
– Monitor trends in incidence and survival;
– Explore the factors that influence outcomes including survival and quality of life in lymphoma patients;
– Act as a resource for clinical trials.