About Latvian Alliance for Rare Diseases
Latvian Alliance for Rare Diseases is national umbrella organization of rare disease patient organizationsĀ in Latvia. Alliance’sĀ goals are:
– to participate in healthcare and social policy development on national and European level;
– to represent interests of people and non-profit organizations ofĀ rare diseasesĀ in Latvia in national and international institutions;
– to provide support and tools to non-profit organizations in field of rare diseases in Latvia for implementation of their interests and building capacity;
– to involve non-profits of rare diseases in processes of decision-making and implementation;
– to foster improvement of healthcare and social welfare systems in Latvia in the field of rare diseases;
– to facilitate the development of civil society in Latvia and Europe.