About iSACRA
iSACRA is a 501(c)(3) nonprofit based in the USA and is the world’s only international organization serving those living with the rare condition of sacral agenesis or caudal regression syndrome (SA/CRS). This website is a resource for those with this condition and their families as well as for medical professionals, educators, and the general public. It contains information about sacral agenesis or caudal regression syndrome, its characteristics, and its treatments. This website provides a glimpse into the lives and perspectives of individuals, children and adults who are living and thriving with this condition. The information contained on this site, and the links provided, are not intended to replace professional medical advice but hopefully will be helpful in advancing an understanding of this condition as experienced by those who live with it and are impacted by it.
On Rare Disease Day, we will raise awareness for rare disease patients on our social media.