About Gesellschaft für Mukopolysaccharidosen (MPS) e.V.
The German MPS society is a patient and self-help organization. Since 1986, our goal has been to initially advise and support those affected by mucopolysaccharidoses (mps), then also by mucolipidosis and mannosidoses, to make the diseases better known among medical professionals and the general public, and to promote research into these rare diseases.
To this end, our counseling center is one of our most important areas of activity. It covers psychosocial as well as socio-legal counseling and is implemented for the most part by peer counselors. Furthermore we provide information on various topics via our website and brochures, maintain close contact with metabolic centers, collaborate with metabolic experts, organize activities such as therapy weeks for those affected as well as family and patient conferences, and represent the interests of our members in committees and boards, such as the Federal Joint Committee (G-BA).
We will share the campaign materials on our social social medias.