Georgian Rett syndrome and other Rare Diseases Association

Georgia Georgia

About Georgian Rett syndrome and other Rare Diseases Association


Main activities focuses on raising awareness, providing support to affected families, promoting awareness about available cure or the treatments, translating the guidelines and resources in the native language for parents and medical professionals. Goals include improving access to resources, advancing medical understanding and fostering a supportive community for those impacted by the Rett syndrome and other rare disease

Partner details

Gvantsa Kvantaliani
Georgia
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