About Enfermedades Raras Costa Rica
The “Red de Enfermedades Raras de Costa Rica” was created by the initiative of two organizations: HIPERTENSIÓN PULMONAR and ANASOVI. Aware that our patients require quick access to a diagnosis of medications, therapies, patient networks and public policies that favor this large group of invisible patients. For this we need to bring together various actors such as politicians, academic doctors and other organizations.