About DupMECP2 Lasst uns MDS heilen
Our association is dedicated to raising awareness of MECP2 duplication syndrome (MDS) and uniting various disciplines and families to accelerate breakthroughs in research and care.
In the context of rare disease day, we are planning to create 3-5 minute videos highlighting MDS as a rare disease and underscoring the significance of each discipline in improving the lives of children affected by these conditions.