About DMD CARE ASSOCIATION
DMD Care Association is NGO organization for social support for children and their families, based in Romania and founded in 2019. We are members of EURORDIS-Rare Diseases Europe and Alliance for Rare Diseases Romania since 2019.
Our main purpose is to improve the life quality of children that are suffering from Duchenne Muscular Dystrophy and other neuromuscular disorders by creating a framework to assist them in health and educational maters.
We do this by providing equitable access to early diagnosis, quality treatments and rehabilitation services, but also various social events and community integration, research, education, lobby and advocacy activities, involving families, medical specialists, teachers and other professionals in the health and educational systems that can make a significant contribution to the successful achievement of these objectives.
We aim to build an effective cooperation network between the families of the children diagnosed with Duchenne Muscular Dystrophy, teachers, doctors, health professionals, authorities and other involved stakeholders, focusing on activities that will help develop diagnostics, treatments, rehabilitation services, as well as research in the field.
DMD Care Association promotes a multidisciplinary approach to healthcare, with a crucial role in the complex evaluation of children, as well as in the development and implementation of treatment and recovery plans.