About Cure MCOPS12
Cure MCOPS12 is a registered nonprofit organization dedicated to improve the lives of children and families affected by MCOPS12. MCOPS12 is an ultra-rare neurological disease caused by a mutation in the retinoic acid receptor beta (RARB) gene. Our mission is to raise awareness and fundraising to support scientific research and drug development that will ultimately result in a cure.
For Rare Disease Day we will be participating in #lightupforrare and helping to spread awareness about rare diseases, especially MCOPS12.