About Cure HSPB8
Cure HSPB8 is a U.S.-based patient advocacy organization dedicated to addressing the challenges of HSPB8 Myopathy — an ultrarare, adult-onset muscle-wasting condition. As the only charitable initiative focused on this debilitating disease, our mission is to improve the lives of individuals and families affected by HSPB8 Myopathy through advocacy, patient support, and research efforts. Our work supports patients and families worldwide, with the ultimate goal of finding a treatment and a cure. We invite you to join us in this mission. Your involvement, whether as someone impacted by HSPB8 myopathy, a supporter, or a healthcare professional, is a step towards change. Together, we are stronger and can create a future where HSPB8 myopathy no longer defines lives.
In recognition of Rare Disease Day, we are excited to release a special-edition newsletter and launch a social media awareness campaign. Stay connected and help us spread the word by visiting our website and following us on LinkedIn (Cure HSPB8), X (@curehspb8), and Facebook (Cure HSPB8). Together, we can shine a light on rare diseases and advocate for meaningful change!