The Adrenal society NVACP focuses on people with adrenal disorders, by representing interests and providing support aimed at limiting the direct and indirect consequences of these diseases.
Purpose
1.Advocacy and support for people in all age groups with adrenal disease and their loved ones.
2.Information provision: Ensuring the development andaccessibility of validated and practical information andproducts, through the society’s official communication channels, for: patients, informal carers and professionals.
3.Involving and actively maintaining (international) contacts and networks (patients (peer contact), informal caregivers and professionals), in order tostimulate knowledge transfer andtheimprovement of care.
4.Improve the visibility of the society and focus on the recruitment of members, volunteers and funds, in order toachieve growth of the society.
5.Professionalizing the internal organization.
We represent the following patient groups:
· Adrenal insufficiency
· Cushing’s syndrome
· Pheochromocytoma
· Primary hyperaldosteronism
· Adrenogenital Syndrome
· Adrenal cortex carcinoma
Who are our members?
We have over 1700 members. Of these, 300 members under the age of 30. Between the ages of 30 and 60 there are 800 members and over 60 years there are about 600 members.
On average, of our members, 1/3 part  is male and 2/3 part female.
Society Helpline: Â +31(0)800-6822765
A group of volunteers staff the society helpline. Members and non-members can call a general number that is forwarded to a particular volunteer each week. He answers the questions, refers where necessary and tries to serve the caller as well as possible. Each volunteer always serves for a week.
To provide our members with information, we have a beautiful website. This is maintained by a number of volunteers. They post new articles, news and an agenda for the activities that will take place there. Information about all Adrenal Disorders can be found on the website. You’ll see Infographics,as well as professional mini-docs  of patients and stories of members. And recently, some volunteers recorded a podcast. Finally, there are a number of Frequently Asked Questions for each clinical picture. An important part of the website is the Forum. This is only accessible to members. It is classified according to the disease profile. Members can ask all kinds of questions and answer questions here.
Funding
As an Adrenal society, we are completely independent. We are an society with idealistic objectives. We receive our financial resources from contributions from the members, donations and grants from the  PBL Fund of the Ministry of Health, Welfare  and Sport. In particular, the government subsidy will change in the coming years. The question then is whether and if so, how much subsidy we will still receive. Of course, we do work together with umbrella organizations and various medical specialists to achieve our objectives. We get a small part of our resources from the sale of products.
