Beck-Fahrner Syndrome Foundation

The Beck-Fahrner Syndrome Foundation is a 501(c)(3) non-profit organization established in Minnesota (United States).  We are led by the volunteer efforts of parents with children affected by Beck-Fahrner syndrome, and are dedicated to creating a community of support and hope for those affected by this rare genetic disease.  Our mission is to accelerate full spectrum research to cure Beck-Fahrner Syndrome (TET3 deficiency) and to empower affected families with information, knowledge, and connectivity.

With the help of Beck-Fahrner syndrome families, four Minnesota (United States) landmarks will be joining the global chain of lights.