About Alliance for rare diseases of Republic of Srpska, Bosnia and Herzegovina
Association of Rare Disease Patients is registered in Bosnia and Herzegovina from April 2019.
The main goal of our Association is improvement of the life of rare disease patients in Bosnia and Herzegovina through networking between patients, their families, health workers and activists, awareness raising and new initiatives.
Udruzenje Oboljelih od Rijetkih Bolesti osnovano je u aprilu 2019 i djeluje na nivou BIH. Glavni cilj Udruzenja je povezivanje oboljelih. Zelimo pomoci poboljsanju uslova zivota oboljelih kroz komunikaciju, podizanje svijesti i nove inicijative.