About ARVC-Selbsthilfe e.V.
Our activities
Organizing lectures with ARVC specialists for patients
Group meetings for the exchange of information and experiences
Providing access to information, therapies, state of the art in research on ARVC
Personal counselling for patients
Support in urgent crisis situations
Regional and transregional networking with specialists and research institutions
Participation in specialist lectures and congresses
Our aims
Sharing experiences and knowledge
Improving access to adequate diagnosis and treatment of ARVC
Improving high quality healthcare
Providing psychological support
Increasing public awareness of the disease
Encouraging the development of new therapies
Intensifying research and support research projects
Preventing sudden cardiac death
We represent patients´needs in the ePAG of European Reference Network ERN Guard-Heart
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