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DEBRA CZ

Patient Group

Ehlers-Danlosův syndrom a syndrom hypermobility

Patient Organisation
Adéla Odrihocká, Eliška Kopicová

HAE Junior

Patient Group
Camelia Isaic

META, z.s.

EURORDIS Member
Katerina Uhlikova

Rare Diseases Czech Republic (Ceska ascociace pro vzacna onemocneni)

National Alliance
Anna Arellanesová
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