Every year, thousands of events are organised around the world during the month of February to mark the occasion of Rare Disease Day. Patient organisations, healthcare professionals, researchers, policymakers and other members of the rare disease community organise Rare Disease Day events.

Here are some ideas of events to get you started:

  • Host a meeting, workshop or conference
  • Hold an art, photography or essay-writing competition
  • Organise a walk or march
  • Plan a sporting or fundraising event
  • Invite policy makers to a political event or present a manifesto to your local authorities
  • Organise a face painting event to #ShowYourRare



Rare disease day is organised by
eurordis logo
With the support
AFM Téléthon logo Chan Zuckerberg Initiative logo European Commission for acknowledgements - DG-Health-and-Consumers