Description
Indonesia Rare Disorders collaborates with Lensa Anak Terminal (Bus Station Children’s Lens Community) to hold photo storytelling workshops for people with rare disorders and their families. The event was held in a hybrid manner and was attended by participants from Indonesia and also one participant from Nepal. The aim is to provide photography and storytelling skills to people with rare disorders and their families.
The results of this photo work will later be exhibited on the peak day of Rare Disease Day commemoration, February 29 2024, which will be followed by an art performance by people with rare disorders.