Description
With the slogan “I am rare alone, together we are strong”, we invite all schools on this day to join us in this campaign, wearing jeans as a symbol of genes (genes) since most rare diseases are due to genetic abnormalities. We encouraging the teachers and students of all schools, to watch a ten-minute educational film titled “Listen to me, Feel me, Understand me”, which we produced in collaboration with an Educational Psychologist. Children with a rare genetic disease alongside with their peers share their thoughts about discrimination, equality and equity. In addition, students and teachers will be photographed with their hands up in support of people with rare diseases.